HAE and AI: How Are You Using It for Your Health?Something has shifted in the last couple of years. A late-night symptom search now sometimes starts with an AI summary before it...reactionscomments
Forged in the Gaps: The Real Cost of Surviving Healthcare BureaucracyThere is a moment many people with rare disease and chronic illness eventually reach. It’s the moment you realize your survival depends...reactionscomments
How I Got Diagnosed With HAEI went a whole 26 years without ever having a swelling attack. I was still well acquainted with the disease though, because...reactionscomments
Turning Pain into Advocacy: My Journey with Hereditary AngioedemaThe hardest part of living with an undiagnosed rare disease wasn't the pain. It was spending years wondering whether anyone would ever...reactionscomments
Getting a Second OpinionA diagnosis that does not feel right or a misdiagnosis can be overwhelming. You may have many questions about your diagnosis. You...reactionscomments
Coping With a New DiagnosisReceiving a new medical diagnosis can be shocking. Learning you have a chronic or terminal health condition can feel jarring and emotional...reactionscomments
HAE is Not Just a Physical Disease: The Mental Battle Inside My HeadMany people know of hereditary angioedema (HAE) as a disease that shows itself physically, but what they don’t see is sometimes the...reactionscomments
The Power of Your Voice: Sharing All Symptoms with All SpecialistsTime and time again, I'm reminded about the importance of telling every single one of my doctors about my health updates –...reactionscomments
Community Views: Navigating the ER as a Rare Disease WarriorLiving with a rare disease creates unique obstacles to healthcare. Specialist doctors understand rare diseases best, but sometimes you need emergency care...reactionscomments
I’ve Learned Self-care. What About Self-love?Editor's Note: This article was written by Jenny Jones and originally appeared on our partner site RareDisease.net. When we experience chronic illness...reactionscomments
Why Joining Your Rare Disease Community Is ImportantEditor's Note: This article was written by Alex Gaudlap and originally appeared on our partner site RareDisease.net. When my son received his...reactionscomments
How Clinical Trials Are Transforming the Future for Rare Disease WarriorsPrior to becoming a rare disease caregiver, I must admit that I overlooked and even doubted the significance of clinical trials. Historical...reactionscomments
Crafting Hope: How Art Helps Me Navigate Rare DiseaseLiving with a rare disease can be exhausting and monotonous. The uncertainty of living with a chronic condition can cast a shadow...reactionscomments
Clinical Trial ParticipationClinical trials are medical studies that pose a question: Does a new treatment and/or test work better than existing standard treatments and/or...reactionscomments
Hereditary-Angioedema.net Giveaway Terms and ConditionsThese Official Rules apply to any giveaway (or "Promotion") published on Hereditary-Angioedema.net, a Health Union ("Health Union" or "We") owned and operated...reactionscomments
Role of Genetics in Rare DiseasesRoughly 7,000 rare diseases have been identified so far. Of those, 8 out of 10 have a genetic cause. Understanding the root...reactionscomments
