The Power of Your Voice: Sharing All Symptoms with All SpecialistsTime and time again, I'm reminded about the importance of telling every single one of my doctors about my health updates –...reactionscomments
Community Views: Navigating the ER as a Rare Disease WarriorLiving with a rare disease creates unique obstacles to healthcare. Specialist doctors understand rare diseases best, but sometimes you need emergency care...reactionscomments
I’ve Learned Self-care. What About Self-love?Editor's Note: This article was written by Jenny Jones and originally appeared on our partner site RareDisease.net. When we experience chronic illness...reactionscomments
Why Joining Your Rare Disease Community Is ImportantEditor's Note: This article was written by Alex Gaudlap and originally appeared on our partner site RareDisease.net. When my son received his...reactionscomments
How Clinical Trials Are Transforming the Future for Rare Disease WarriorsPrior to becoming a rare disease caregiver, I must admit that I overlooked and even doubted the significance of clinical trials. Historical...reactionscomments
Crafting Hope: How Art Helps Me Navigate Rare DiseaseLiving with a rare disease can be exhausting and monotonous. The uncertainty of living with a chronic condition can cast a shadow...reactionscomments
Clinical Trial ParticipationClinical trials are medical studies that pose a question: Does a new treatment and/or test work better than existing standard treatments and/or...reactionscomments
Hereditary-Angioedema.net Giveaway Terms and ConditionsThese Official Rules apply to any giveaway (or "Promotion") published on Hereditary-Angioedema.net, a Health Union ("Health Union" or "We") owned and operated...reactionscomments
Role of Genetics in Rare DiseasesRoughly 7,000 rare diseases have been identified so far. Of those, 8 out of 10 have a genetic cause. Understanding the root...reactionscomments
