About Us
At Hereditary-Angioedema.net we empower patients and caregivers to take control of hereditary angioedema by providing a platform to learn, educate, and connect with peers and healthcare professionals.
Hereditary angioedema can have an enormous impact on the lives of patients and their loved ones. Whether you have just started experiencing the early signs and symptoms of hereditary angioedema or have been living with hereditary angioedema for years, Hereditary-Angioedema.net strives to provide you with tools and resources to help manage your disease. Although there is no cure for hereditary angioedema, we hope the information provided by patients, caregivers, and healthcare professionals at Hereditary-Angioedema.net will help improve your quality of life.
NOTE: Only you and your doctor can decide which treatments are right for you. Do not stop taking or change a treatment or prescription medicine, or the way you use them, without first consulting your doctor.
At Hereditary-Angioedema.net, we strive to provide you with the most accurate and relevant information. We use only trustworthy sources, such as the US Food and Drug Administration (FDA) and peer-reviewed journals, among others. We follow the principles of the Health On the Net Foundation to provide transparent and reliable health information.
Hereditary-Angioedema.net also features articles contributed by physicians, patient advocates, or other healthcare experts. We may also have “guest experts” who contribute articles on specific topics featured in the Hereditary-Angioedema.net newsfeed. The author of each of these articles is clearly marked along with a link to the author’s profile. Hereditary-Angioedema.net does not edit these articles, as they represent the thoughts, opinions, and judgments of their authors.
We encourage people impacted by hereditary angioedema to share their own experiences with the community. We welcome your questions, comments, and suggestions! Please email us at contact@hereditary-angioedema.net, and we will respond as soon as possible.
Please note that our team hours are Monday-Friday 8:30 am to 5:30 pm EST. While we may respond during the evenings and weekends, we cannot guarantee a response outside of our standard team hours.
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