Hereditary-Angioedema.net GiveawayWe're excited to announce a special giveaway for our community! We understand the challenges that come with HAE, and our goal is...reactionscomments
Grieving the Freedom to Just Be: The Invisible Weight of HAE and MSWhen we think about grief, we often associate it with losing someone we love, the end of a relationship, or a life-altering...reactionscomments
The HAE Mental Load Nobody SeesSome days, the hardest thing I have to do is something ridiculously small. Answer an email. Make a phone call. Take a...reactionscomments
Finding Strength in Shared Stories: Living with Hereditary AngioedemaLiving with hereditary angioedema (HAE) can often feel like navigating an unpredictable landscape. Because flares can strike without warning and affect different...reactionscomments
When HAE Advocacy Opens Doors You Never ExpectedBetween July and August, my advocacy changed shape three times. In July, I joined the U.S. Hereditary Angioedema Association for Capitol Hill...reactionscomments
Things I Do Because of My HAEThe other day someone made a comment to me that made me realize something: I do a bunch of things without thinking...reactionscomments
Navigating Motherhood with HAEBeing a mom with a chronic illness was not a hat I thought I would ever have to wear. But here I...reactionscomments
8 Things My HAE Diagnosis Taught MePersonally, I have always tried to find the positive, even in the most negative of situations. When I was first diagnosed with...reactionscomments
My First Time at the ER with HAEAfter I was officially diagnosed with hereditary angioedema (HAE), there was a bit of time that lapsed before I was able to...reactionscomments
My First HAEA SummitThis time last year, I was at my very first HAEA Summit, and it was arguably the best thing I did after...reactionscomments
A Letter to the Newly Diagnosed with HAETo the newly diagnosed, First and foremost, you are allowed to feel however you feel about this new diagnosis. It's new. It's...reactionscomments
HAE and AI: How Are You Using It for Your Health?Something has shifted in the last couple of years. A late-night symptom search now sometimes starts with an AI summary before it...reactionscomments
Finding a Support Person for Doctor AppointmentsPeople with chronic health conditions like Hereditary Angioedema often face complex treatment plans and multiple doctor visits. Brain fog, fatigue, and problems...reactionscomments
Forged in the Gaps: The Real Cost of Surviving Healthcare BureaucracyThere is a moment many people with rare disease and chronic illness eventually reach. It’s the moment you realize your survival depends...reactionscomments
How I Got Diagnosed With HAEI went a whole 26 years without ever having a swelling attack. I was still well acquainted with the disease though, because...reactionscomments
Turning Pain into Advocacy: My Journey with Hereditary AngioedemaThe hardest part of living with an undiagnosed rare disease wasn't the pain. It was spending years wondering whether anyone would ever...reactionscomments
Advocating for Yourself With Your DoctorThe process of being diagnosed with a chronic health condition can be long and difficult. People with Hereditary Angioedema often have a...reactionscomments
10 Questions to Ask Your Doctor When You Are Newly DiagnosedIt is often hard to know what to ask, or even where to begin, when you have questions about a new diagnosis...reactionscomments
Getting a Second OpinionA diagnosis that does not feel right or a misdiagnosis can be overwhelming. You may have many questions about your diagnosis. You...reactionscomments
Coping With a New DiagnosisReceiving a new medical diagnosis can be shocking. Learning you have a chronic or terminal health condition can feel jarring and emotional...reactionscomments
