10 Questions to Ask Your Doctor When You Are Newly DiagnosedIt is often hard to know what to ask, or even where to begin, when you have questions about a new diagnosis...reactionscomments
Getting a Second OpinionA diagnosis that does not feel right or a misdiagnosis can be overwhelming. You may have many questions about your diagnosis. You...reactionscomments
Coping With a New DiagnosisReceiving a new medical diagnosis can be shocking. Learning you have a chronic or terminal health condition can feel jarring and emotional...reactionscomments
HAE is Not Just a Physical Disease: The Mental Battle Inside My HeadMany people know of hereditary angioedema (HAE) as a disease that shows itself physically, but what they don’t see is sometimes the...reactionscomments
The Power of Your Voice: Sharing All Symptoms with All SpecialistsTime and time again, I'm reminded about the importance of telling every single one of my doctors about my health updates –...reactionscomments
Community Views: Navigating the ER as a Rare Disease WarriorLiving with a rare disease creates unique obstacles to healthcare. Specialist doctors understand rare diseases best, but sometimes you need emergency care...reactionscomments
Common Tests and Tools for Diagnosing a Rare DiseaseAn incorrect or delayed diagnosis of a rare disease is common. Because so few people have a particular rare condition, the doctors...reactionscomments
I’ve Learned Self-care. What About Self-love?Editor's Note: This article was written by Jenny Jones and originally appeared on our partner site RareDisease.net. When we experience chronic illness...reactionscomments
Why Joining Your Rare Disease Community Is ImportantEditor's Note: This article was written by Alex Gaudlap and originally appeared on our partner site RareDisease.net. When my son received his...reactionscomments
Mastering the Infusion: A Guide to Self-Administration and Port CareLiving with hereditary angioedema (HAE) means you must be ready for a swelling attack at any time. Learning to give yourself your...reactionscomments
Understanding Clinical TrialsA clinical trial is a type of research. Research is the process scientists use to discover how our bodies work or why...reactionscomments
Clinical Trial GlossaryClinical trials have a language of their own. If you are considering joining 1 of these studies, it helps to understand the...reactionscomments
HAE and the Estrogen Connection: A Guide to Hormonal TriggersHereditary angioedema (HAE) is a rare disease that causes painful and sudden swelling in the body. Many factors can lead to these...reactionscomments
The Diagnostic Maze: Why Was I Misdiagnosed?Finding the cause of your rare disease can feel like a long journey. Many people with hereditary angioedema (HAE) spend years looking...reactionscomments
How Clinical Trials Are Transforming the Future for Rare Disease WarriorsPrior to becoming a rare disease caregiver, I must admit that I overlooked and even doubted the significance of clinical trials. Historical...reactionscomments
Crafting Hope: How Art Helps Me Navigate Rare DiseaseLiving with a rare disease can be exhausting and monotonous. The uncertainty of living with a chronic condition can cast a shadow...reactionscomments
Clinical Trial ParticipationClinical trials are medical studies that pose a question: Does a new treatment and/or test work better than existing standard treatments and/or...reactionscomments
Understanding Hereditary Angioedema (HAE)People with hereditary angioedema (HAE) may spend years searching for answers. The road to an accurate diagnosis can be long and difficult...reactionscomments
Hereditary-Angioedema.net Giveaway Terms and ConditionsThese Official Rules apply to any giveaway (or "Promotion") published on Hereditary-Angioedema.net, a Health Union ("Health Union" or "We") owned and operated...reactionscomments
Role of Genetics in Rare DiseasesRoughly 7,000 rare diseases have been identified so far. Of those, 8 out of 10 have a genetic cause. Understanding the root...reactionscomments
