Advocating for Yourself With Your DoctorThe process of being diagnosed with a chronic health condition can be long and difficult. People with Hereditary Angioedema often have a...reactionscomments
10 Questions to Ask Your Doctor When You Are Newly DiagnosedIt is often hard to know what to ask, or even where to begin, when you have questions about a new diagnosis...reactionscomments
Getting a Second OpinionA diagnosis that does not feel right or a misdiagnosis can be overwhelming. You may have many questions about your diagnosis. You...reactionscomments
Coping With a New DiagnosisReceiving a new medical diagnosis can be shocking. Learning you have a chronic or terminal health condition can feel jarring and emotional...reactionscomments
HAE is Not Just a Physical Disease: The Mental Battle Inside My HeadMany people know of hereditary angioedema (HAE) as a disease that shows itself physically, but what they don’t see is sometimes the...reactionscomments
The Power of Your Voice: Sharing All Symptoms with All SpecialistsTime and time again, I'm reminded about the importance of telling every single one of my doctors about my health updates –...reactionscomments
Community Views: Navigating the ER as a Rare Disease WarriorLiving with a rare disease creates unique obstacles to healthcare. Specialist doctors understand rare diseases best, but sometimes you need emergency care...reactionscomments
Common Tests and Tools for Diagnosing a Rare DiseaseAn incorrect or delayed diagnosis of a rare disease is common. Because so few people have a particular rare condition, the doctors...reactionscomments
I’ve Learned Self-care. What About Self-love?Editor's Note: This article was written by Jenny Jones and originally appeared on our partner site RareDisease.net. When we experience chronic illness...reactionscomments
Why Joining Your Rare Disease Community Is ImportantEditor's Note: This article was written by Alex Gaudlap and originally appeared on our partner site RareDisease.net. When my son received his...reactionscomments
Mastering the Infusion: A Guide to Self-Administration and Port CareLiving with hereditary angioedema (HAE) means you must be ready for a swelling attack at any time. Learning to give yourself your...reactionscomments
Understanding Clinical TrialsA clinical trial is a type of research. Research is the process scientists use to discover how our bodies work or why...reactionscomments
Clinical Trial GlossaryClinical trials have a language of their own. If you are considering joining 1 of these studies, it helps to understand the...reactionscomments
HAE and the Estrogen Connection: A Guide to Hormonal TriggersHereditary angioedema (HAE) is a rare disease that causes painful and sudden swelling in the body. Many factors can lead to these...reactionscomments
The Diagnostic Maze: Why Was I Misdiagnosed?Finding the cause of your rare disease can feel like a long journey. Many people with hereditary angioedema (HAE) spend years looking...reactionscomments
How Clinical Trials Are Transforming the Future for Rare Disease WarriorsPrior to becoming a rare disease caregiver, I must admit that I overlooked and even doubted the significance of clinical trials. Historical...reactionscomments
Crafting Hope: How Art Helps Me Navigate Rare DiseaseLiving with a rare disease can be exhausting and monotonous. The uncertainty of living with a chronic condition can cast a shadow...reactionscomments
Clinical Trial ParticipationClinical trials are medical studies that pose a question: Does a new treatment and/or test work better than existing standard treatments and/or...reactionscomments
Understanding Hereditary Angioedema (HAE)People with hereditary angioedema (HAE) may spend years searching for answers. The road to an accurate diagnosis can be long and difficult...reactionscomments
Hereditary-Angioedema.net Giveaway Terms and ConditionsThese Official Rules apply to any giveaway (or "Promotion") published on Hereditary-Angioedema.net, a Health Union ("Health Union" or "We") owned and operated...reactionscomments
