Community Health Leaders

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By Editorial Team

1 min read

In order to stay up to date on latest treatments, drug discovery, clinical studies and how to cope with Hereditary Angioedema every day, Hereditary-Angioedema.net brings you frequent articles, points of view, and advice from leading health leaders and experts.

Health Leader Name

Hollie Amadio

I’m Hollie Amadio, a patient advocate, patient leader, and single mom of four living with hereditary angioedema (HAE) and multiple sclerosis (MS). Like many people in the rare disease community, my path to diagnosis wasn’t straightforward. Read more.

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Shelby Jerman

Shelby Jerman is a mom, school bus driver, content creator and a rare disease advocate. Shelby was diagnosed with Hereditary Angioedema two years ago. Despite recently being diagnosed, she has always known of the disease due to it running in her family. Read more.

Hereditary-Angioedema.net Health Leaders are offered compensation for their contributions to the Hereditary-Angioedema.net community. If you are interested in joining our team, please contact us at contact@hereditary-angioedema.net.