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Read conversations, start a discussion, and connect with others about Hereditary Angioedema.

How do you handle the uncertainty of planning life events with HAE?

Share your tips for planning events or work commitments while managing unpredictable flares in our community forum....

Have you advocated for the HAE community?

"We do not all have to advocate in the same way. We can begin in the room we are already in, with...

What are some things that you do now, after being diagnosed with HAE?

"I recognize you by your shoes - you always wear those ones." 👟 A simple comment from a friend made one community...

Parenting with HAE: Sharing Strategies, Stories, and Support

Are you raising a family while living with HAE? Navigating parenthood while managing a rare disease brings unique challenges, but you don't...

It's Giveaway Time!

Enter for a chance to win a medication cooler travel case to help you keep your HAE medications cool Get more details about the giveaway here.

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What do you wish others knew about hereditary angioedema?

There are plenty of misconceptions and a lot of unknown information about hereditary angioedema. What's something you wish people understood about the...

What are some lingering questions you have?

All questions are safe here. What hereditary angioedema topics would you like to know more about? Please post your question here, and...

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